It's a rain delay from the Tiger game, so I thought I would do a quick post. Felt better today than yesterday, still slight upset stomach. I have to check my BP every am because high blood pressure can be a side effect of the new drug I am receiving. It is going up, so please pray that does not become a problem and I might have to stop taking it.
Enjoyed a wonderful dinner of shrimp salad from Chris. Thank you so much. We shared it with my in-laws who we went to see for a quick visit tonight. Shirley is looking better than before she was admitted to the hospital. Hopefully every day she gets stronger. She is looking forward to her sister coming for a couple of weeks to help care for her.
We are looking forward to Ross and Rumy coming tomorrow evening. They are going to play at Beechwood on Sunday and they will be doing that on a regular basis until Christmas.
It is not looking so good to get this game going :( We looked forward to this all day.
Friday, September 30, 2011
Thursday, September 29, 2011
Is Bald Really Beautiful??
Not so sure I agree with that statement, but maybe I just need to get used to it. Mieke did the honors last night. Not feeling the best today, had a headache during the night. The nurse warned me if I get a headache, be sure and take something RIGHT AWAY!! So I got up at 3am and took some Tylenol. My stomach is very queasy today, so I am thinking I will be feeling the worst on my every third week treatment when I get all three chemo drugs. Not liking wearing the wig either, it squeezes my head, but I'm sure I need to get used to it also. Aaron didn't even notice I was wearing it today, so that is a good sign.
My friend Vickie surprised me last night with another beautiful bouquet of blue hydrangeas. I love them, they have become my "signature" flower throughout this journey.
Thanks Barb for bringing the "Eet Smakelijk" dish and all the fixins' for dinner. It is so appreciated. We love it.
We are excited to watch the Tigers play the Yankees tomorrow night. Hope it stops raining sometime. They just announced the top 10 for Artprize, and I still have not seen any of them.
Good new, Shirley, my mother-in-law returned home from the hospital today, really glad to be home, and seems to be feeling better. More answered prayers......thanks everyone.
My friend Vickie surprised me last night with another beautiful bouquet of blue hydrangeas. I love them, they have become my "signature" flower throughout this journey.
Thanks Barb for bringing the "Eet Smakelijk" dish and all the fixins' for dinner. It is so appreciated. We love it.
We are excited to watch the Tigers play the Yankees tomorrow night. Hope it stops raining sometime. They just announced the top 10 for Artprize, and I still have not seen any of them.
Good new, Shirley, my mother-in-law returned home from the hospital today, really glad to be home, and seems to be feeling better. More answered prayers......thanks everyone.
Wednesday, September 28, 2011
Is this the day?
Hair starting to come out in bigger amounts, so tonight could be the night. I have listened to enough people's advice and I am actually ready to try my new wig. We'll see what Mieke says...she is the boss. Again, being the first day after chemo I feel pretty good, it gets around 3pm and then reality hits. So I am enjoying my morning. Our AT&T U-verse box went out (second time in a month) so I have been waiting all morning for the technician to show up. Not here yet and it's past noon.
I want to tell Linda how nice it was to get home late from chemo and have dinner waiting for us in the refrig. Thanks so much to my neighbor for putting the sign on the door explaining where we were. I love "Walnut" my new teddie bear. She said I could hug him, or punch him, whatever the need may be. I told her he was too cute, I don't think I could ever punch him, but who knows?????
Thanks also to my neighbor Linda for the fresh warm out of the oven scones. They were delicious!! I am so greatful for all the love and support, it keeps me going.
After talking with the Drs yesterday and other chemo patients, I am thinking of my condition more as a chronic disease rather than a terminal illness. The people there tell me such encouraging stories of other patients who were told to give up, nothing they could do, and now some of them are cancer free!! Miracles really do happen and I am praying for that too.
An update on Shirley my mother-in-law, they removed her gallbladder last evening. They are only 50/50 on whether that will help her or not. She was feeling a little better, so let's hope that was it.
Please add my co-worker Michele's husband Lauren to your prayers. He had a stem cell transplant at Harper Hospital (my old nursing school by the way) and was home, but had to return to Spectrum for severe pain in his feet from gout. Hang in there Lauren and family, we are pulling for you too.
Those Tigers pulled out another one last night. We'll see what happens tonight, the last regular game of the season. Hope they go all the way!!!
I want to tell Linda how nice it was to get home late from chemo and have dinner waiting for us in the refrig. Thanks so much to my neighbor for putting the sign on the door explaining where we were. I love "Walnut" my new teddie bear. She said I could hug him, or punch him, whatever the need may be. I told her he was too cute, I don't think I could ever punch him, but who knows?????
Thanks also to my neighbor Linda for the fresh warm out of the oven scones. They were delicious!! I am so greatful for all the love and support, it keeps me going.
After talking with the Drs yesterday and other chemo patients, I am thinking of my condition more as a chronic disease rather than a terminal illness. The people there tell me such encouraging stories of other patients who were told to give up, nothing they could do, and now some of them are cancer free!! Miracles really do happen and I am praying for that too.
An update on Shirley my mother-in-law, they removed her gallbladder last evening. They are only 50/50 on whether that will help her or not. She was feeling a little better, so let's hope that was it.
Please add my co-worker Michele's husband Lauren to your prayers. He had a stem cell transplant at Harper Hospital (my old nursing school by the way) and was home, but had to return to Spectrum for severe pain in his feet from gout. Hang in there Lauren and family, we are pulling for you too.
Those Tigers pulled out another one last night. We'll see what happens tonight, the last regular game of the season. Hope they go all the way!!!
Tuesday, September 27, 2011
4th Chemo treatment/ second cycle / 1st Day post Awesome Tiger Game
Hi, I am still sitting in the chemo recliner gettin' stuff, one more drug to go. The good news is that Priority Health has approved payment for the Avastin med. YEH!!!!!!!! They got the word yesterday. What an answer to prayer, thank you all for remembering that in your daily requests. We can check that one off. I think we figured out today, that I may be having symptoms from the IV Benadryl rather than the chemo.......so anyways, we may try next week with oral Benadryl instead of the IV stuff. That would also be an answer to prayer.
I need to have a follow up EGD 10 wks from my previous one. So Zeeland friends, I will see you again on Nov. 9 bright and early, (of course I asked for the first one of the day) with Dr. "P".
I am not telling you this to start working on my second basket! You had better not do that or I will feel bad for saying any thing. Looking forward to seeing you all again.
Now for the exciting part of today's blog. The "Dreams Come True" experience was totally awesome. Stan, Mieke, Alden and I arrive at 4:30 pm at the Administrative Offices at Comerica Park. We were met by Donna who is the PR person in charge. She greeted us warmly, gave us our tickets, and a bag full of Tiger goodies. She explained what was going to happen and then took us down under the park onto the field to watch batting practice. The weather on our way down was on and off again hard rain, lots of dark clouds, so were very afraid we might get rained out. Somehow when we arrived, the sun came out, coats came off and it ended up being a perfect weather night for baseball, with not a single drop of rain. I was excited when the first person I saw a few feet from me when we got out there, standing right next to the Tiger dugout was Cabrerra. Then walks by Jim Leland the manager. We couldn't snap the pics fast enough. Sitting in the dugout was Al Kaline, a man from my generation. She had warned me that don't plan on meeting my favorite Tigers because so close to the playoffs they may be preoccupied, so that was not on my brain. I was looking around and to my surprise I see up on the large scoreboard this:
That stayed up a long time. Then Donna takes me over in front of the dugout steps and here motioning with his finger "come on down here" was Magglio Ordonez. He greeted me, put his arm around me, had pics taken with him and signed his autograph on my shirt. She said sometimes the players prefer to do this in private, so other fans don't descend on him and mob him. So fun! I thought, OK they got me one of my favorites, that will be it.
I have a bad habit of licking my chops before a picture, how dumb, hope the pics Donna took are better:)
At the end of batting practice, the players were all coming off the field, and again they wisked me away from my family in front of the dugout and who comes right up to me, but none other than Justin Verlander!!
I put my arm around his waist, and let me tell you there was no extra adipose tissue there my friends. The first base coach Tom Brookens also came over to greet me and sign my shirt. Too fun!!
If you watched the game, you know what a lot of hits and home runs there were. A foul ball even came right at me, and I thought, OK, how did they arranged that to happen??, Stan tried, but the guy a couple seats down from us got it, it was his birthday.
The best part of the whole night was the reason we think I was selected by sending in my application for this dream come true. I had sent a copy of Stan's first blog, the story about our first date being at the Tiger game, and my "milkshake request", etc . She said she loved it and she wanted to give us a "2nd date".....Thanks Stan the Man, you are the best. Thanks Mieke for the video, it's awesome. Thanks Jim for the extra tickets so we all could go. Love you all!!
I am finally home now from chemo, unfortunately having to wait for a lab result, I was there for 8 1/2 hrs........ugh. Oh well, chemo is my friend, it is what is going to kill this cancer, and keep me a Tiger fan for a looooooooooong time. Deb
I need to have a follow up EGD 10 wks from my previous one. So Zeeland friends, I will see you again on Nov. 9 bright and early, (of course I asked for the first one of the day) with Dr. "P".
I am not telling you this to start working on my second basket! You had better not do that or I will feel bad for saying any thing. Looking forward to seeing you all again.
Now for the exciting part of today's blog. The "Dreams Come True" experience was totally awesome. Stan, Mieke, Alden and I arrive at 4:30 pm at the Administrative Offices at Comerica Park. We were met by Donna who is the PR person in charge. She greeted us warmly, gave us our tickets, and a bag full of Tiger goodies. She explained what was going to happen and then took us down under the park onto the field to watch batting practice. The weather on our way down was on and off again hard rain, lots of dark clouds, so were very afraid we might get rained out. Somehow when we arrived, the sun came out, coats came off and it ended up being a perfect weather night for baseball, with not a single drop of rain. I was excited when the first person I saw a few feet from me when we got out there, standing right next to the Tiger dugout was Cabrerra. Then walks by Jim Leland the manager. We couldn't snap the pics fast enough. Sitting in the dugout was Al Kaline, a man from my generation. She had warned me that don't plan on meeting my favorite Tigers because so close to the playoffs they may be preoccupied, so that was not on my brain. I was looking around and to my surprise I see up on the large scoreboard this:
At the end of batting practice, the players were all coming off the field, and again they wisked me away from my family in front of the dugout and who comes right up to me, but none other than Justin Verlander!!
If you watched the game, you know what a lot of hits and home runs there were. A foul ball even came right at me, and I thought, OK, how did they arranged that to happen??, Stan tried, but the guy a couple seats down from us got it, it was his birthday.
I am finally home now from chemo, unfortunately having to wait for a lab result, I was there for 8 1/2 hrs........ugh. Oh well, chemo is my friend, it is what is going to kill this cancer, and keep me a Tiger fan for a looooooooooong time. Deb
Tigers Video
A little preview of our time at Comerica Park on Monday night. Mieke made this video for all to enjoy!
Sunday, September 25, 2011
Happy 8th Birthday Ryan!!
Alden and Mary's party was so much fun. They had great food, great friends and a great house for a whole gang of people. They lucked out on the weather too, only had few sprinkles by the time it started, so people could sit outside on their new patio they built and enjoy the fire going in the portable fire pit, play lawn games and enjoy a wonderful fall evening. Alden used his new Infrared cooker to do a turkey and pulled pork. People sat around in the living room and watched the Tigers, good game (unfortunately they lost). Mary is such a gracious host and did an amazing job with all the preparations. Her sisters and her parents also were there to lend a hand.Thank you guys for including me as one of the reasons for the party. Everyone was so kind, wishing me well and such support to get through this cancer treatment.
Did not make it to any Artprize exhibits because of the rain. Trust me I will be watching the weather and I will be down there sometime this week. Thanks for all your suggestions of wheelchairs, etc. to see things if my body does not agree with my need to "see it all".
I made it to church again this am. I love being part of worship when Mieke is up there singing. It makes my day. She is such a blessing to me, I am so proud of her. I loved seeing and being greeted with hugs by so many Beechwood friends. Thanks for all your care and love in so many ways. I was happy to see my co-worker Betsy and meet her Mom. I miss you too and all my friends on nights at the birth center. I told her I often think I should just go up there at 2am and visit when I can't sleep. If I tried that, it would probably end up being one of those nights when the "baby bus" comes in and there are so many women in labor you don't know if you are coming or going.
Grandma Hoksbergen is still in Hackley Hospital having tests to see what's really going on. Hang in there Shirley.
I want to quote something from another wonderful devotional I received from my dear friend and co-worker Sara. It is called "Ending Your Day Right" by Joyce Meyer. On Sept. 14 it was entitled "Learn How to Fly" Those who wait for the Lord...shall change and renew their strength...they shall lift their wings and mount up (close to God) as eagles...they shall run and not be weary, they shall walk and not faint or become tired. Isaiah 49:31
God's Word makes several references to eagles, the most powerful winged creature on earth, and I believe you can learn some valuable lessons from them.
Eagles do not fear or run from a storm--they allow the powerful wind currents to lift them above it. Nor do they waste time battling with other birds. When attacked, they simply mount up higher, soaring effortlessly above their enemies.
When you grow weary of the struggles and battles of the "lower life", (cancer, sickness and tests in hospitals) it's time to learn to fly.
Allow God to teach you how to fly above your problems. Be determined to know Him and the power for His resurrection. You'll discover that when you're soaring close to the heart of God, you can face whatever comes without growing tired and weary.
So many people have asked me, how do you keep your spirits up? stay so positive? well, this is the reason. I am flying...... and I hope Shirley this helps you too.
I just had a visit from a very special little friend of mine. His Mom and Dad, Chad and Brandi brought us lunch today. They told me he came in to tell me that today was a special day, his birthday. I knew right then, I remembered back 8 years ago, I was their nurse when Ryan was born by C/S. I always told them, he was the cutest little baby I had ever seen.....Thanks for the memories, it has gone so fast. I love your family!
Did not make it to any Artprize exhibits because of the rain. Trust me I will be watching the weather and I will be down there sometime this week. Thanks for all your suggestions of wheelchairs, etc. to see things if my body does not agree with my need to "see it all".
I made it to church again this am. I love being part of worship when Mieke is up there singing. It makes my day. She is such a blessing to me, I am so proud of her. I loved seeing and being greeted with hugs by so many Beechwood friends. Thanks for all your care and love in so many ways. I was happy to see my co-worker Betsy and meet her Mom. I miss you too and all my friends on nights at the birth center. I told her I often think I should just go up there at 2am and visit when I can't sleep. If I tried that, it would probably end up being one of those nights when the "baby bus" comes in and there are so many women in labor you don't know if you are coming or going.
Grandma Hoksbergen is still in Hackley Hospital having tests to see what's really going on. Hang in there Shirley.
I want to quote something from another wonderful devotional I received from my dear friend and co-worker Sara. It is called "Ending Your Day Right" by Joyce Meyer. On Sept. 14 it was entitled "Learn How to Fly" Those who wait for the Lord...shall change and renew their strength...they shall lift their wings and mount up (close to God) as eagles...they shall run and not be weary, they shall walk and not faint or become tired. Isaiah 49:31
God's Word makes several references to eagles, the most powerful winged creature on earth, and I believe you can learn some valuable lessons from them.
Eagles do not fear or run from a storm--they allow the powerful wind currents to lift them above it. Nor do they waste time battling with other birds. When attacked, they simply mount up higher, soaring effortlessly above their enemies.
When you grow weary of the struggles and battles of the "lower life", (cancer, sickness and tests in hospitals) it's time to learn to fly.
Allow God to teach you how to fly above your problems. Be determined to know Him and the power for His resurrection. You'll discover that when you're soaring close to the heart of God, you can face whatever comes without growing tired and weary.
So many people have asked me, how do you keep your spirits up? stay so positive? well, this is the reason. I am flying...... and I hope Shirley this helps you too.
I just had a visit from a very special little friend of mine. His Mom and Dad, Chad and Brandi brought us lunch today. They told me he came in to tell me that today was a special day, his birthday. I knew right then, I remembered back 8 years ago, I was their nurse when Ryan was born by C/S. I always told them, he was the cutest little baby I had ever seen.....Thanks for the memories, it has gone so fast. I love your family!
Saturday, September 24, 2011
Oh my, it's starting........
I was putting some goop in my hair after my shower this am, and I noticed hair coming out on my hands and falling into the sink. Soooooooooooo I guess this really is going to happen.
Friday, September 23, 2011
A Good Friday
Had a nice relaxing day today, and felt pretty good too. Had a nice visit with my friend Jane, who made us some great banana bread!
Jodi thanks for the Panera meals for the weekend! You are so sweet.
Tonight we had a wonderful time having dinner with some great friends. Carol and Stewart, you are wonderful hosts, great meal, fun stories. can't thank you enough. Stewart, when are you coming home next??
I am so excited for tomorrow night, Alden and Mary are having a get together at their house. It is an Oktoberfest in September. It is kind of a house warming and it was suppose to be a meet my new wig but sorry, my hair is still here. Alden said I could still come without the wig. We might try to see a few Artprize things before their party. I have difficulty walking very far because my stomach hurts, but I am determined to see some of that art. Will give a report on what we see tomorrow night.
Jodi thanks for the Panera meals for the weekend! You are so sweet.
Tonight we had a wonderful time having dinner with some great friends. Carol and Stewart, you are wonderful hosts, great meal, fun stories. can't thank you enough. Stewart, when are you coming home next??
I am so excited for tomorrow night, Alden and Mary are having a get together at their house. It is an Oktoberfest in September. It is kind of a house warming and it was suppose to be a meet my new wig but sorry, my hair is still here. Alden said I could still come without the wig. We might try to see a few Artprize things before their party. I have difficulty walking very far because my stomach hurts, but I am determined to see some of that art. Will give a report on what we see tomorrow night.
Thursday, September 22, 2011
Something exciting to share
I want to wish a very happy birthday to someone special. She is an old friend of ours from Lansing, MI. Jennifer is the founder of Shining a Light, an organization in Tanzania that helps empower women and children through employment, education and spiritual enrichment. They make the most beautiful sandals! I want to share her web site so you can all learn about her exciting mission. I am so proud of you Jennifer.
http://shiningalight.org/index.php
I have felt pretty much the same today as yesterday, the new "normal". A constant stomach ache. I am thankful for no nausea. I had a busy day with lots of wonderful company. My cousin Carol came to see me. She is from Lynden,WA. It was so good to see her again and get caught up. I love the Carol Roeda "acorn basket" and I will think of you fondly whenever I see it. Marilyn and Roy, other cousins, your gift for the "shower fund" is too kind. Thanks so much. We are holding up our cute tea bags from my sister Kris (notice the Detroit Tiger pumpkin) :)
My sister-in-law Miriam stopped by today on her way to Ferrysburg to help around the in-laws house. Thanks for the "angel" and magazine Miriam. You are a wonderful person with all your volunteer efforts with the Burmese kids. We had been in frequent contact with Stan's Dad about his Mom. She is now in Hackley Hospital. We anticipate she will be having gallbladder surgery, but at this point it is too "hot" to take out. She is now on antibiotics and hopefully with be on the mend soon.
This afternoon I had a visit with David, my friend and chaplain from Holland Hospital. We have been on mission trips to Honduras together and our kids went to school together. It was so good to catch up, thanks for the love and support. My love to your whole family, Barb,Anna, Emily and Nate.
Well, how about them Tigers last night!! They need to get going right now, behind 5-1 Yikes!
http://shiningalight.org/index.php
I have felt pretty much the same today as yesterday, the new "normal". A constant stomach ache. I am thankful for no nausea. I had a busy day with lots of wonderful company. My cousin Carol came to see me. She is from Lynden,WA. It was so good to see her again and get caught up. I love the Carol Roeda "acorn basket" and I will think of you fondly whenever I see it. Marilyn and Roy, other cousins, your gift for the "shower fund" is too kind. Thanks so much. We are holding up our cute tea bags from my sister Kris (notice the Detroit Tiger pumpkin) :)
My sister-in-law Miriam stopped by today on her way to Ferrysburg to help around the in-laws house. Thanks for the "angel" and magazine Miriam. You are a wonderful person with all your volunteer efforts with the Burmese kids. We had been in frequent contact with Stan's Dad about his Mom. She is now in Hackley Hospital. We anticipate she will be having gallbladder surgery, but at this point it is too "hot" to take out. She is now on antibiotics and hopefully with be on the mend soon.
This afternoon I had a visit with David, my friend and chaplain from Holland Hospital. We have been on mission trips to Honduras together and our kids went to school together. It was so good to catch up, thanks for the love and support. My love to your whole family, Barb,Anna, Emily and Nate.
Well, how about them Tigers last night!! They need to get going right now, behind 5-1 Yikes!
Wednesday, September 21, 2011
Day started out good.......
I felt pretty good this am, but as the day went on, the chemo camouflage drugs seem to wear off and then my abd discomfort seems to bother me more than ever. It was a beautiful day though which was so nice. I tried to run a few errands this afternoon with Mieke, but I have to say I was too uncomfortable to even enjoy TJMax. That is pretty bad for me :( When I got home there was a nice surprise on my front porch which brought a smile to my face. Thanks Jill for the cute "Tiger" pumpkin and the hydrangea, I love them.
We have something nice to look forward to, thanks Clarence and Trina for your generous gift certificate to Salt and Pepper. We love that place!!
One thing I really look forward to is visiting with my friends. It seems to take my mind off of some of things I face right now. It is also fun for me when some of the people who bring meals have a little time to visit. Mary Lou thanks so much for the Stromboli and soup. We loved it.
My mother-in-law continues to have health concerns. She may have pancreatitis and may possibly need her gallbladder out. To see her Dr. tomorrow. Please remember Shirley in your prayers. She did enjoy a little chicken soup tonight. Thank goodness for that.
I heard from my old grade school friend from Virginia that he may come visit me in Oct. Hope to see you Dave!
Tigers are on, hope they do better than they did last night!
We have something nice to look forward to, thanks Clarence and Trina for your generous gift certificate to Salt and Pepper. We love that place!!
One thing I really look forward to is visiting with my friends. It seems to take my mind off of some of things I face right now. It is also fun for me when some of the people who bring meals have a little time to visit. Mary Lou thanks so much for the Stromboli and soup. We loved it.
My mother-in-law continues to have health concerns. She may have pancreatitis and may possibly need her gallbladder out. To see her Dr. tomorrow. Please remember Shirley in your prayers. She did enjoy a little chicken soup tonight. Thank goodness for that.
I heard from my old grade school friend from Virginia that he may come visit me in Oct. Hope to see you Dave!
Tigers are on, hope they do better than they did last night!
Tuesday, September 20, 2011
Chemo Day #3
Hi, Today's treatment took 3 hr and 15 min. That is the shortest amt of time we have been there yet. I am so happy to report that the new cream that I got to numb the skin 1 hr. prior to sticking in the chemo needle worked! I didn't feel a thing. I am happy about that, because that smarted. I did have the hypersensitivity reaction again to the Taxol, and they have now said I will probably have that every time. She said it is rare to have that reaction, but some people do. I said, well then it makes sense that I would have it, because I tend to have a lot of rare things happen to me.
Thanks to pastor Dawn for coming up, sitting with us and having prayer.
I now understand that I have finished my first cycle. A cycle is either once a week for 3 wks, or once every 3 wks. The Avastin is never started until the 2nd or 3rd cycle. They have not got word yet if Priority will pay for that drug or not. They said sometimes it's good that they don't reject you right away, it means they are at least thinking about it.
I felt very tired when I got home and took a long nap. But, I have to tell you that we did make a quick stop somewhere on our way home. It is a place I have wanted to see since Jackie told me about it. It is the WAR (Women at Risk) Boutique on 44th street. She heard the director of this speak a while back and was so impressed with the organization. My PEO group is going to have her speak to us this year also. Please check out their web site if you want to read about a huge problem that most have no idea is going on right here in the US. www.warinternational.org
Women At Risk, International (WAR, Int’l) is a nonprofit organization established to place circles of protection around women at risk. The purpose and passion of this organization is to wrap arms of love around women and children, whispering the message that they were created for purpose and dignity. Creating safe places for women and children rescued from many abuses including human trafficking/sexual slavery, WAR, Int’l desires to give voice to their silenced cries.
We have the Tiger station on and they just showed a special segment about the "Dreams Come True" program that I get to be a part of next Monday. I am really getting excited about that night.
Duane, in answer to your question, Ross is a contract player and is used when they have pieces that require a 3rd trumpet. He gets asked quite often and has some gigs for Oct. already too.
Many people have said they have heard about Stan's blog, but they don't know how to find it. If you look to the right on my blog, you click on Stan's blog, and you go right to it. He is making me cry and laugh reliving lots of the crazy things that have happened in our 36 yrs together.
Thanks to pastor Dawn for coming up, sitting with us and having prayer.
I now understand that I have finished my first cycle. A cycle is either once a week for 3 wks, or once every 3 wks. The Avastin is never started until the 2nd or 3rd cycle. They have not got word yet if Priority will pay for that drug or not. They said sometimes it's good that they don't reject you right away, it means they are at least thinking about it.
I felt very tired when I got home and took a long nap. But, I have to tell you that we did make a quick stop somewhere on our way home. It is a place I have wanted to see since Jackie told me about it. It is the WAR (Women at Risk) Boutique on 44th street. She heard the director of this speak a while back and was so impressed with the organization. My PEO group is going to have her speak to us this year also. Please check out their web site if you want to read about a huge problem that most have no idea is going on right here in the US. www.warinternational.org
Women At Risk, International (WAR, Int’l) is a nonprofit organization established to place circles of protection around women at risk. The purpose and passion of this organization is to wrap arms of love around women and children, whispering the message that they were created for purpose and dignity. Creating safe places for women and children rescued from many abuses including human trafficking/sexual slavery, WAR, Int’l desires to give voice to their silenced cries.
We have the Tiger station on and they just showed a special segment about the "Dreams Come True" program that I get to be a part of next Monday. I am really getting excited about that night.
Duane, in answer to your question, Ross is a contract player and is used when they have pieces that require a 3rd trumpet. He gets asked quite often and has some gigs for Oct. already too.
Many people have said they have heard about Stan's blog, but they don't know how to find it. If you look to the right on my blog, you click on Stan's blog, and you go right to it. He is making me cry and laugh reliving lots of the crazy things that have happened in our 36 yrs together.
Monday, September 19, 2011
Oh no, now what
I was sitting on the couch this am having my morning coffee and the TV kind of popped and turned off. I got up to see what happened and there was water dripping down the screen. I looked up to the ceiling and saw that it was dripping out of the drywall . Oh no, not this again. 9 years ago we had a leak in our shower which is right above our family room TV. I have the same construction company coming out to check out the problem, for now, we don't use that shower, or that TV.
I felt pretty good today, only time it seems to be uncomfortable is after I eat. I have to remember to eat tiny meals.
Did a few errands with Mieke and then had a chance to visit with my two neighbors Lori and Cheryl. You couldn't ask for better people than them. I love and appreciate you guys and thank you for your generosity and caring.
Thank you Lynn for your chicken and pasta dinner, it so hit the spot and was great to enjoy a little French vino with you.
I am psyched and ready for Chemo #3 tomorrow. So anxious to find out the answer to Priority Health paying for the Avastin drug or not? Will let you know....Deb
I felt pretty good today, only time it seems to be uncomfortable is after I eat. I have to remember to eat tiny meals.
Did a few errands with Mieke and then had a chance to visit with my two neighbors Lori and Cheryl. You couldn't ask for better people than them. I love and appreciate you guys and thank you for your generosity and caring.
Thank you Lynn for your chicken and pasta dinner, it so hit the spot and was great to enjoy a little French vino with you.
I am psyched and ready for Chemo #3 tomorrow. So anxious to find out the answer to Priority Health paying for the Avastin drug or not? Will let you know....Deb
Sunday, September 18, 2011
Ross and Rumy Wedding Pictures Aug. 21, 2011 Bulgaria
The symphony was wonderful last night. We went out afterwords with Ross, Rumy and some of the other members of the orchestra. It was so nice getting to know them. I was so glad that I felt as well as I did yesterday to do all that we did. It was so sweet when Ross came and tucked me in bed with a kiss good night.
Today I was able to attend church for the first time since my surgery. I was greeted warmly by so many Beechwood members, I can't begin to tell you how wonderful it feels to be loved and supported by you all. Our pastor Jim spoke about Christ giving gifts to each one of us and by using the gifts, Christ is served and the body of Christ is built up. Well, you all are sure doing a good job with your gifts of serving, mercy, helps and I am praying that those with the gifts of healing and miracles keep working on me too. Thanks Janet for requesting your sister's small group pray for me, and Donna, please thank The Piece Makers' Quilting Group for your beautiful quilt. I love it and all the Bible verses on it. They are from Central Christian Church, Henderson, Nevada. I was so touched to read about Joyce and the story of her starting this ministry. I am honored that you pray for me every week. For those who would like to check it out, go to piecemakerquilts@aol.com .
We were able to visit Stan's Mom today. She continues to need your prayers. She has not been able to eat much and is having blood work done tomorrow. Shirley we love you and want you to regain your strength so you can keep working on your crafts and get back to normal.
Had a quick visit with my fellow nurse and friend Char. Thanks for the cookies Char, Ross couldn't resist eating a few on the way home. (From one MSU fan to another)
Vickie, the Crane's apple pie is to die for. So sweet of you. Roland and Lisseth (Stan's brother and his wife) stopped over for a quick visit to check how we were doing and brought goodies of homemade bead, chocolates and her favorite French wine La Vieille Ferme (it has chickens on the label). I love it Lisseth!! You are so thoughtful.
Do you know how special it feels when a Hope College student brings you dinner? Lindsey you are so special, always so full of life, one in a million. Thanks so much, the apple pork chops were so good. Terrie, you done good raising that one.
It was a busy day, a full day, but a great one. I am tired tonight, but am so thankful I could enjoy the beautiful day with so many loved ones and friends, even got a ride home from church in Lori's convertible.
As Duane commented, I am being served by "hands and feet of Christ" and I thank you. Deb
Nice Sat. in Sept.
People have been asking me what the score what from last night's football game, well congrats to Rockford, they won 41-16. I am glad I didn't have a big wager with my sister-in-law. My nieces were great in the Rockford marching band. Hope they do well in their invitational today.
We had a nice visit this am with some friends who live here in Holland, Jack and Lee. They are also old friends of my parents from the CRC church in Detroit and I used to babysit their girls. They were so kind to bring us a Gammy's Peach'a'Berry Heirloom Pie from the Holland Market. Can't wait to dig into it. It was so fun to reminisce about old times and catch up with current events and family updates.
My parents can't seem to visit without me needing a little repair done around the house. Dad and Stan fixed a leak under my sink. We realized that even having cancer doesn't stop pipes from leakin'.
We did stay up to watch the Tigers win last night, WOO HOO!! I have heard from some of you readers that I have even created some new Tiger fans out there! We are watching both MSU vs. Notre Dame and the Tiger game now.
I am feeling pretty good again today, thank goodness. We are looking forward to the GR Symphony tonight, Ross and Rumy will come back here tonight and we are going to visit with Grandma Hoksbergen tomorrow for lunch.
Lori, I have to tell you that my Dad said after eating your pumpkin pie and lasagna,"This girl is a good cook". It has turned into the most beautiful fall day, hope you are all enjoying it as much as I am. Hope to go to church tomorrow. Last week tonight was my worst night, I am not planning on repeating that!
Deb
We had a nice visit this am with some friends who live here in Holland, Jack and Lee. They are also old friends of my parents from the CRC church in Detroit and I used to babysit their girls. They were so kind to bring us a Gammy's Peach'a'Berry Heirloom Pie from the Holland Market. Can't wait to dig into it. It was so fun to reminisce about old times and catch up with current events and family updates.
My parents can't seem to visit without me needing a little repair done around the house. Dad and Stan fixed a leak under my sink. We realized that even having cancer doesn't stop pipes from leakin'.
We did stay up to watch the Tigers win last night, WOO HOO!! I have heard from some of you readers that I have even created some new Tiger fans out there! We are watching both MSU vs. Notre Dame and the Tiger game now.
I am feeling pretty good again today, thank goodness. We are looking forward to the GR Symphony tonight, Ross and Rumy will come back here tonight and we are going to visit with Grandma Hoksbergen tomorrow for lunch.
Lori, I have to tell you that my Dad said after eating your pumpkin pie and lasagna,"This girl is a good cook". It has turned into the most beautiful fall day, hope you are all enjoying it as much as I am. Hope to go to church tomorrow. Last week tonight was my worst night, I am not planning on repeating that!
Deb
Saturday, September 17, 2011
I Get By With a Little Help from My Friends
The title for today's blog is the saying that was on the pillow that my friend Karen gave to me today from the great Beatle's song. It sure is true. I don't know what I would do without all the support and love I have received from my friends. Today was another example of this.
First my friend Denise brought over Panera pastries and Frappacinos a great way to start the day. She surprised me with another very special gift. I was a sub on a Bunco team and these wonderful girls, Carolyn, Sherri, Sheryl, Janet, Julia, Karen, Joy, Janet and Denise gave me a beautiful pendent necklace with the words LOVE, HOPE, TRUST and it has a little ruby on it. I was so touched by your kindness, I love it!!
Kim has been cutting my hair for over 20 years. I helped her have her second child. Today was a first, she came and gave me a hair cut at my house. I didn't have another hair cut appt. made because I figured I would have lost my hair by now and I wouldn't need one. Well, my hair is hanging in there (the nurses say it will probably start falling out after next weeks chemo). Thanks Kim for the house call and the scones. You are a doll and I appreciate you!
My Mom and Dad decided to make the trip to Holland from Plymouth this afternoon. After enjoying a wonderful lasagna meal from Lori we decided to hop in the car and attend the West Ottawa/Rockford football game. I have two nieces who march in the Rockford marching band and I have wanted to see them march. It was a fun night, they did a great job and my aunt Margie met us there too.
It is now past midnight, and the Tigers are winning 3-1. Not sure I will be able to stay up for the whole game or not.
Tomorrow night is going to be fun, we are going to hear Ross play with the Grand Rapids Symphony , Can't Wait!!
I felt pretty good today, hope that continues. I need Mieke to post the wedding pictures, will try and get her to do that tomorrow. Deb
First my friend Denise brought over Panera pastries and Frappacinos a great way to start the day. She surprised me with another very special gift. I was a sub on a Bunco team and these wonderful girls, Carolyn, Sherri, Sheryl, Janet, Julia, Karen, Joy, Janet and Denise gave me a beautiful pendent necklace with the words LOVE, HOPE, TRUST and it has a little ruby on it. I was so touched by your kindness, I love it!!
Kim has been cutting my hair for over 20 years. I helped her have her second child. Today was a first, she came and gave me a hair cut at my house. I didn't have another hair cut appt. made because I figured I would have lost my hair by now and I wouldn't need one. Well, my hair is hanging in there (the nurses say it will probably start falling out after next weeks chemo). Thanks Kim for the house call and the scones. You are a doll and I appreciate you!
My Mom and Dad decided to make the trip to Holland from Plymouth this afternoon. After enjoying a wonderful lasagna meal from Lori we decided to hop in the car and attend the West Ottawa/Rockford football game. I have two nieces who march in the Rockford marching band and I have wanted to see them march. It was a fun night, they did a great job and my aunt Margie met us there too.
It is now past midnight, and the Tigers are winning 3-1. Not sure I will be able to stay up for the whole game or not.
Tomorrow night is going to be fun, we are going to hear Ross play with the Grand Rapids Symphony , Can't Wait!!
I felt pretty good today, hope that continues. I need Mieke to post the wedding pictures, will try and get her to do that tomorrow. Deb
Thursday, September 15, 2011
Mom and Mums
Alden here.
So Mom kind of likes it when other people write the blog because she doesn't have to think about it, but yet she always has to proof read it before you post because she is worried you will forget to thank someone.
Basically she looks great and is up and around better than I thought she would be tonight. Every once in a while she gets "achy" and has to sit down and recoup her strength for a minute. Although she had some abdominal pain last night, it wasn't quite as bad today. Nausea has not been a problem, and her hair still looks like it did ten years ago.
Overall it's very impressive how well she seems to be doing through all of this. She really enjoyed the beautiful fall day, and getting to spend it with some good friends. From across the room she says thanks Mary Lou for the Mums.
It really seems like it was months ago that I had to spend the night with her in the hospital, and only getting 10 mins of sleep in between beeps and nurse visits.
Now she wants me to post a bunch of pictures of Ross' wedding in Bulgaria, but I think I'll leave that for whoever gets to write on this thing tomorrow.
Love,
Alden
ps. Watch for me at the ND vs. State game this Saturday. The distributor I sell through down in South Bend was kind enough to get me 2 tickets to the game, and although it's not the Wolverines, it should still be a fun game. Go Tigers, Go Blue.
So Mom kind of likes it when other people write the blog because she doesn't have to think about it, but yet she always has to proof read it before you post because she is worried you will forget to thank someone.
Basically she looks great and is up and around better than I thought she would be tonight. Every once in a while she gets "achy" and has to sit down and recoup her strength for a minute. Although she had some abdominal pain last night, it wasn't quite as bad today. Nausea has not been a problem, and her hair still looks like it did ten years ago.
Overall it's very impressive how well she seems to be doing through all of this. She really enjoyed the beautiful fall day, and getting to spend it with some good friends. From across the room she says thanks Mary Lou for the Mums.
It really seems like it was months ago that I had to spend the night with her in the hospital, and only getting 10 mins of sleep in between beeps and nurse visits.
Now she wants me to post a bunch of pictures of Ross' wedding in Bulgaria, but I think I'll leave that for whoever gets to write on this thing tomorrow.
Love,
Alden
ps. Watch for me at the ND vs. State game this Saturday. The distributor I sell through down in South Bend was kind enough to get me 2 tickets to the game, and although it's not the Wolverines, it should still be a fun game. Go Tigers, Go Blue.
Wednesday, September 14, 2011
New blog, old dog and some really nice people
Stan writing here tonight. Deb enjoyed spending part of the day with our oldest son Ross. He was in town to rehearse with the GR symphony and stayed overnight between rehearsals. Somebody dropped off some apples from Cranes and Deb just told me it was Claudia who she works with. She was hoping to join some of her fellow workers at Cranes but that did not work out with Ross being here. This afternoon Deb and Mieke joined some other members of their PEO group at the Center for Women in Transition. PEO is a group of women who support many things in this community and others and they learned some things about the Center from the director. Deb's good friend Jackie, brought a bunch of goodies over and a great find from a local thrift store. She is the best at finding new or next to new things at these stores.
Then a nice package came with some neat things from Deb's sister Krista. To top off the day Karol Hicks brought over a nice meal. I had previously regarded myself as the finest preparer of pork tenderloin but had to firsthand come to the position that that honor goes to her. The rest of the stuff was good as well. She has recently been elected as an elder of our church and wherever she goes things get lively. She had just returned from California where her husband works. Kind of one of these Jet set relationships.
We are having to consider the dreaded day when the quality of life for our dog Spencer might be reaching the point that it is not right to have things go on. Deb talked to the vet today and we might have a time here soon where our family can have a chance to say good-bye before we do anything. I can still recall the day 15 years ago he came bouncing out of his cage to the delight of Mieke. Spencer has been a perfect dog for us.
The end of the day is bringing Deb a bout with feeling some real pain and that is why I am writing this. She has not felt like this yet with this whole ordeal and is surprised by it. She had such a good day up till a few hours ago.
My mom is home and doing OK but also not one her best days today. Niece Becky is back to work but uses a scooter for her broken ankle. Deb's dad is doing better on some new medication.
I want to take a moment to thank everyone for the fine expressions of love and support you have given both of us. I does not make the trouble disappear but it sure does help. I would have never imagined any thing like what people have done for us. Really special!
Stan the Man for Deb
Then a nice package came with some neat things from Deb's sister Krista. To top off the day Karol Hicks brought over a nice meal. I had previously regarded myself as the finest preparer of pork tenderloin but had to firsthand come to the position that that honor goes to her. The rest of the stuff was good as well. She has recently been elected as an elder of our church and wherever she goes things get lively. She had just returned from California where her husband works. Kind of one of these Jet set relationships.
We are having to consider the dreaded day when the quality of life for our dog Spencer might be reaching the point that it is not right to have things go on. Deb talked to the vet today and we might have a time here soon where our family can have a chance to say good-bye before we do anything. I can still recall the day 15 years ago he came bouncing out of his cage to the delight of Mieke. Spencer has been a perfect dog for us.
The end of the day is bringing Deb a bout with feeling some real pain and that is why I am writing this. She has not felt like this yet with this whole ordeal and is surprised by it. She had such a good day up till a few hours ago.
My mom is home and doing OK but also not one her best days today. Niece Becky is back to work but uses a scooter for her broken ankle. Deb's dad is doing better on some new medication.
I want to take a moment to thank everyone for the fine expressions of love and support you have given both of us. I does not make the trouble disappear but it sure does help. I would have never imagined any thing like what people have done for us. Really special!
Stan the Man for Deb
Tuesday, September 13, 2011
Chemo Day #2 done
Hello Everyone, thought I would give you a quick update on how today went and some new info I found out. I was there for approx. 4 1/2 hrs. today, so much for it being a 2 hr. day. Guess I will always keep my brain in flexible mode on Tues. My labs work was good, I only had the one chemo drug Taxol today. I will be having the second one Carboplatin every 3rd week. They still are waiting to hear from Priority about approval for the Avastin drug. Please keep praying for that request!
I again had a reaction (sensitivity) to the Taxol, so they had to stop it and restart it later, much slower and that is why it took so long. I guess I can't help it that I am such a "sensitive person". I talked with Dr. Harrison, and he finally talked by phone to the main person in charge of the Clinical Trial, just to get a "for sure" answer . He said they did not want to include me in the study, because of my 4 yr ago history of thyroid cancer, it might muddy the study. So at least we know now for sure.
I asked when they would be checking on if the chemo is working. He said they would be checking my blood test the CA-125 test probably after 3 cycles, (a cycle is 3 wks) so approx around 9 wks. He also said they would do a CT scan somewhere around that time also. Everything is approx. and subject to change, so he doesn't like to ever say something is "for sure". When I ask him some questions, he says do you want to see my crystal ball?? I said yes, he pulls out his phone, and he has an app with a crystal ball, you ask it a question and it gives an answer. So, I said, "Will my CA-125 be lower than 1000? I rubbed the crystal ball, and it slowly answerd " Undoubtedly Yes" . So there you go, a look into the future.
I have to tell you what a small world it is out there. I sat down in the waiting room across from this nice couple. I didn't recognize them. Her name was Dolly. A unique name, I knew one once... Anyways, when I got up to use the bathroom during chemo today, that woman asked Nancy (my sister-in-law) I heard her last name is Hoksbergen, did she ever live in Jackson? Nancy said, why yes she did about 34 yrs ago. When I came out, sure enough it was the Dolly and her husband Frank Klomperans , that we know in Jackson, MI where we bought our first house, went to the CRC church there, and had their girls in youth group. They moved to Allendale in 1996 and she has been treated for Ovarian cancer for 4 yrs. We will see each other in 2 wks and have fun catching up.
Get this, when I told Stan about this, he said, that is very weird because I thought about them today and I was going to write about them in my blog today.......doodoo.... doodoo......
It was fun to come home to a box from California from ProPlants on my front porch. In it is a beautiful succulent plants with chicks and hens, etc. and I love it! I will definitely keep it inside and enjoy it all year. Thanks Todd and Megan, we are also so happy to have know you guys for a long time, watch you grow up, get married, and now to be such special friends of Alden and Mary. Love you!
The beautiful cards continue to appear in my mailbox and I am so appreciative for all your kind words, notes of encouragement, emails and texts. They bring me to tears usually, I am a real sap. Thanks Jean for sharing you journal with me, so special. I think I should be getting a commission from the book "Jesus Calling" because it is so cool how may of you have shared that we are all reading the same page together every morning. A pretty positive way to start the day.
Please pray for my good friend Crystal who had a knee replacement today in Wisconsin, she used to live in Holland, was a nurse and she and her husband went to Beechwood. Hope your recovery is uneventful!!, miss you and we love you guys!
Please also remember my grade school friend Ellen, the nurse who helped take care of me in the hospital, she is having some major health issues and may be facing more surgery. Love you Ellen, and I am praying for you!
Beechwood friends know about Ken, but for others reading this blog, please add him to your prayer list. He is going to be undergoing Radiation at U of M soon and we wish him the best and successful treatment. Ken was Alden's mentor when he made profession of faith. ( I hand picked him). Love you Ken!
Tigers are winning again WOO HOO sorry this is so long, what happened to the quick note. I blame my rambling on the steroids!! Tomorrow I will give you a medical update on all my relatives...... Deb
I again had a reaction (sensitivity) to the Taxol, so they had to stop it and restart it later, much slower and that is why it took so long. I guess I can't help it that I am such a "sensitive person". I talked with Dr. Harrison, and he finally talked by phone to the main person in charge of the Clinical Trial, just to get a "for sure" answer . He said they did not want to include me in the study, because of my 4 yr ago history of thyroid cancer, it might muddy the study. So at least we know now for sure.
I asked when they would be checking on if the chemo is working. He said they would be checking my blood test the CA-125 test probably after 3 cycles, (a cycle is 3 wks) so approx around 9 wks. He also said they would do a CT scan somewhere around that time also. Everything is approx. and subject to change, so he doesn't like to ever say something is "for sure". When I ask him some questions, he says do you want to see my crystal ball?? I said yes, he pulls out his phone, and he has an app with a crystal ball, you ask it a question and it gives an answer. So, I said, "Will my CA-125 be lower than 1000? I rubbed the crystal ball, and it slowly answerd " Undoubtedly Yes" . So there you go, a look into the future.
I have to tell you what a small world it is out there. I sat down in the waiting room across from this nice couple. I didn't recognize them. Her name was Dolly. A unique name, I knew one once... Anyways, when I got up to use the bathroom during chemo today, that woman asked Nancy (my sister-in-law) I heard her last name is Hoksbergen, did she ever live in Jackson? Nancy said, why yes she did about 34 yrs ago. When I came out, sure enough it was the Dolly and her husband Frank Klomperans , that we know in Jackson, MI where we bought our first house, went to the CRC church there, and had their girls in youth group. They moved to Allendale in 1996 and she has been treated for Ovarian cancer for 4 yrs. We will see each other in 2 wks and have fun catching up.
Get this, when I told Stan about this, he said, that is very weird because I thought about them today and I was going to write about them in my blog today.......doodoo.... doodoo......
It was fun to come home to a box from California from ProPlants on my front porch. In it is a beautiful succulent plants with chicks and hens, etc. and I love it! I will definitely keep it inside and enjoy it all year. Thanks Todd and Megan, we are also so happy to have know you guys for a long time, watch you grow up, get married, and now to be such special friends of Alden and Mary. Love you!
The beautiful cards continue to appear in my mailbox and I am so appreciative for all your kind words, notes of encouragement, emails and texts. They bring me to tears usually, I am a real sap. Thanks Jean for sharing you journal with me, so special. I think I should be getting a commission from the book "Jesus Calling" because it is so cool how may of you have shared that we are all reading the same page together every morning. A pretty positive way to start the day.
Please pray for my good friend Crystal who had a knee replacement today in Wisconsin, she used to live in Holland, was a nurse and she and her husband went to Beechwood. Hope your recovery is uneventful!!, miss you and we love you guys!
Please also remember my grade school friend Ellen, the nurse who helped take care of me in the hospital, she is having some major health issues and may be facing more surgery. Love you Ellen, and I am praying for you!
Beechwood friends know about Ken, but for others reading this blog, please add him to your prayer list. He is going to be undergoing Radiation at U of M soon and we wish him the best and successful treatment. Ken was Alden's mentor when he made profession of faith. ( I hand picked him). Love you Ken!
Tigers are winning again WOO HOO sorry this is so long, what happened to the quick note. I blame my rambling on the steroids!! Tomorrow I will give you a medical update on all my relatives...... Deb
Monday, September 12, 2011
Much better day today
I am happy to report that I slept all night and felt much better today. It was such a gorgeous weather day, I spent most of the day sitting out on the porch. Jackie came over for coffee this am. My friend Marcia stopped by to loan me her DVD player to take to chemo with me, and also gave me some wonderful DVD's to enjoy, some on travel and others humorous. Marcia being a ca survivor knows the importance of laughing. She also took me for a ride out to the state park in her convertible, so fun!!
I had a nice visit by Greg, one of the pastors from my church. Thanks Greg for your words of encouragement, love, support and your prayer.
I also had a great visit from my friend and co-worker Nicki and her three darling kids. She brought me a beautiful lime green and lavender quilt made by the North Holland Reformed Church Hope Quilt Ministry. The card that came with it is so beautiful, I want to share it with you. It says,
This quilt is a gift of love and prayer. It is a statement of our belief in prayer, our faith in God, and in His power to comfort , strengthen, encourage and heal. Each knot represents a prayer that was said for you.
Thank you so much, I know three nurses, ( Nicki, Jodi and Katie) that I work with go to that church, plus a nurse, Dawn who works at my Drs. office and is a recent cancer survivor. Your love and prayers mean so much, they are what is keeping me sane through this whole journey.
Betty, your white chicken chili really hit the spot for dinner, and your cookies were awesome. Thanks for your kindness.
We're watching the Tigers win so far. Nancy goes with us to chemo tomorrow and will go back to Plymouth from GR. I appreciate all your help around here, you are wonderful!
I had a nice visit by Greg, one of the pastors from my church. Thanks Greg for your words of encouragement, love, support and your prayer.
I also had a great visit from my friend and co-worker Nicki and her three darling kids. She brought me a beautiful lime green and lavender quilt made by the North Holland Reformed Church Hope Quilt Ministry. The card that came with it is so beautiful, I want to share it with you. It says,
This quilt is a gift of love and prayer. It is a statement of our belief in prayer, our faith in God, and in His power to comfort , strengthen, encourage and heal. Each knot represents a prayer that was said for you.
Thank you so much, I know three nurses, ( Nicki, Jodi and Katie) that I work with go to that church, plus a nurse, Dawn who works at my Drs. office and is a recent cancer survivor. Your love and prayers mean so much, they are what is keeping me sane through this whole journey.
Betty, your white chicken chili really hit the spot for dinner, and your cookies were awesome. Thanks for your kindness.
We're watching the Tigers win so far. Nancy goes with us to chemo tomorrow and will go back to Plymouth from GR. I appreciate all your help around here, you are wonderful!
Sunday, September 11, 2011
Not my greatest day
Well, the effects of chemo have finally gotten to me. I started to have "serious gut" issues last evening while watching the U of M game and it continued ALL NIGHT and still today. I am following all the instructions in my book to manage this. I have still been able to enjoy the day by watching the Lions win, the Tigers win and see Serena Williams loose :( I was hoping to go to church because Mieke was singing at the Bridge service, but I was just not up to it.
My sister-in-law Nancy has been here today and taking good care of us and did some grocery shopping. Thanks Nancy for everything!
Last evening some neighbors and friends surprised me with a visit and a big basket full of Tiger goodies. So fun, thanks Carol, Margaret and Leah. See the pic below. They knew that I had applied to be a "Dreams Come True" guest of the Tigers. 4 of us get to attend the Sept.26 game against the Indians. We get to go on the field, meet Tigers and watch batting practice. Some free gifts and prizes are also in store for us. Can't wait!!
My next door neighbor Mary Claire also came over to visit with some homemade Wonton and a beautiful poster of Hydrangeas with the words Invincible Spirit and said I needed to have it, it reminded her of me. thanks so much.
I want to thank so many of you for your kind offers to take me to chemo. Believe me I will take you up on it. Mieke wants to take me to most of them for now, but I'm sure she will get sick of it soon, and then I will be calling you all.
I also want to thank all of you who have told me that you have added me to your prayer list or your church or bible studies prayer list. I so appreciate it and I can feel the love and support from all the prayers.
Love to all, Deb
My sister-in-law Nancy has been here today and taking good care of us and did some grocery shopping. Thanks Nancy for everything!
Last evening some neighbors and friends surprised me with a visit and a big basket full of Tiger goodies. So fun, thanks Carol, Margaret and Leah. See the pic below. They knew that I had applied to be a "Dreams Come True" guest of the Tigers. 4 of us get to attend the Sept.26 game against the Indians. We get to go on the field, meet Tigers and watch batting practice. Some free gifts and prizes are also in store for us. Can't wait!!
My next door neighbor Mary Claire also came over to visit with some homemade Wonton and a beautiful poster of Hydrangeas with the words Invincible Spirit and said I needed to have it, it reminded her of me. thanks so much.
I want to thank so many of you for your kind offers to take me to chemo. Believe me I will take you up on it. Mieke wants to take me to most of them for now, but I'm sure she will get sick of it soon, and then I will be calling you all.
I also want to thank all of you who have told me that you have added me to your prayer list or your church or bible studies prayer list. I so appreciate it and I can feel the love and support from all the prayers.
Love to all, Deb
Saturday, September 10, 2011
Tiger Game was GREAT!!!!!!!!!
Made it back to Holland today around 4pm. Had a wonderful time on my little road trip. Aside from a little rain (which ponchos from the Dollar Store worked wonderfu!) we saw a wonderful game. The Twins got 4 runs in the first inning and we thought , this is going to be a LONG game, but the Tigers came roaring back and made it lots of fun. The rain held off so we could see the great fireworks, and then it started to pour on our walk back to the car. I can't say that I felt normal, I always have an ache in my abdomen and my stomach always feels kind of queasy (like I am sea sick). I have to tell you that I was not at ALL tempted to order a "milkshake". In fact, I could hardly look at people imbibing. The pictures below tell it all . Thanks Mom and Dad and Nancy for taking me!
Before we left for home, we had to attend the Plymouth Fall Festival's Kiwanis Pancake Breakfast. My Dad has been in charge of this for many years, and he has been flippin' the best pancakes as he was doing this am. He is now training some of the younger members to take over the duties.
Thank you Anna for the great dinner last night, yes, Stan did save some for me! You knew the way to his heart with ice cream pie!!
We are watching lots of great US Open tennis and looking forward to the big game under the lights tonight. GO BLUE
I have to thank Mieke and Stan for surprising me by totally cleaning my car inside and out!! Love you guys, can't wait to start driving again.
Thank you Anna for the great dinner last night, yes, Stan did save some for me! You knew the way to his heart with ice cream pie!!
We are watching lots of great US Open tennis and looking forward to the big game under the lights tonight. GO BLUE
I have to thank Mieke and Stan for surprising me by totally cleaning my car inside and out!! Love you guys, can't wait to start driving again.
Thursday, September 8, 2011
On a Field Trip
Those that know me, know I am not one to stay home very well. So when my Mom called and said, do you want to go to the Tiger game Friday night, I said sure! So here I am in Plymouth staying at my sister-in-law's house tonight. Caught a ride from Stan to Lansing, got a ride from my parents from there to Plymouth. I spent the day at Ross and Rumy's house in Lansing. Helped them do a little decorating, etc. Then we got a tour of the MSU Union where Ross works as a graduate intern manager and he bought us a pizza for supper. I am still feeling pretty good since my chemo on Tues. I am taking the anti-nausea meds and Tylenol. I am more nervous thinking about "when am I going to get sick" then feeling sick. We stopped at the outlet stores in Howell on our way to Plymouth and I did a little birthday shopping for my kids. I am happy to be spending time with my parents because I know my diagnosis has not been easy on them.
I will come back Sat. am with Nancy my sister-in-law to Holland, where she will be attending a wedding Sat. pm.
Pray that I can continue to live my life to the fullest, and I can make it to the Game tomorrow night. GO TIGERS!! Look for me on TV, behind 1st base. Deb
I will come back Sat. am with Nancy my sister-in-law to Holland, where she will be attending a wedding Sat. pm.
Pray that I can continue to live my life to the fullest, and I can make it to the Game tomorrow night. GO TIGERS!! Look for me on TV, behind 1st base. Deb
Wednesday, September 7, 2011
Superwoman
Mieke here, reporting for blog duty....
Mom had chemo yesterday, and guess what....she feels great! We are so happy that she isn't down and out, sick or tired. Actually, she had more energy than usual, whew, who would've thought!? After a very long day yesterday (of sitting and waiting) today was refreshing and wonderful. I love that she can come out with me and do simple errands like return books and movies. For some reason, errands just aren't that bad when I'm with her. I hope everyone has someone like that in their life.
I haven't reported things from "my side" lately and I feel like maybe I should do that, share my heart. First off, let me tell you how happy I am that mom is here, feeling pretty good, and has started chemo. I'm also glad that I can be here with her, supporting the best that I can. I can't lie, it is strange not living at Hope this year. I love going back to school and being with my friends all the time (it usually isn't the studying part that I look forward to). So when I'm not there for the random 1:00 am dance parties or lazy Saturday's it does make me miss Hope. BUT, with that said, I am not looking for a pity party or any sympathy because I love being here with Mom and Dad just spending time together like we used to in high school. There are some people who go to college and hate coming home for visits or summer, but I'm kind of the person who looks forward to those times. I like spending time with my parents, call me lame, but I do.
Mom still has cancer, and life isn't peachy, but I'm happy that we can be together and see people we love all the time. Another new routine that we have gotten used to is mom opening cards (me watching) and just crying together about how nice people have been. I know we have said this all the time, but we are learning a lot through all of this. We opened a card today from someone who just went through cancer. She wrote very comforting words that touched us both. Did we send her a card when she was sick? no. But, we are learning and this has changed us, changed us for good. Expect something from us next time you're down and out.
My mom is superwoman. So strong and beautiful. She looks great, makes me laugh and we have a pretty good time together. Thanks mom, I love you.
I meant to do this a while ago, but I think my mom wanted me to put some pics up of the new and improved craft room. I have been using it a bunch and now I do my homework down there too. I love it. Thanks Aunt Krista for helping me finish this project, it has been a long time coming.
Here is a picture of Kris and Tim up north this past weekend. What fun!
Much love to all, Mieke
Mom also wants me to thanks couple people for things today.
Karen for the wonderful supper. We enjoyed it very much.
Lori for the very cute sunflower and banana bread, always good to visit with you.
Vickie for the flowers, they are so beautiful.
Mom had chemo yesterday, and guess what....she feels great! We are so happy that she isn't down and out, sick or tired. Actually, she had more energy than usual, whew, who would've thought!? After a very long day yesterday (of sitting and waiting) today was refreshing and wonderful. I love that she can come out with me and do simple errands like return books and movies. For some reason, errands just aren't that bad when I'm with her. I hope everyone has someone like that in their life.
I haven't reported things from "my side" lately and I feel like maybe I should do that, share my heart. First off, let me tell you how happy I am that mom is here, feeling pretty good, and has started chemo. I'm also glad that I can be here with her, supporting the best that I can. I can't lie, it is strange not living at Hope this year. I love going back to school and being with my friends all the time (it usually isn't the studying part that I look forward to). So when I'm not there for the random 1:00 am dance parties or lazy Saturday's it does make me miss Hope. BUT, with that said, I am not looking for a pity party or any sympathy because I love being here with Mom and Dad just spending time together like we used to in high school. There are some people who go to college and hate coming home for visits or summer, but I'm kind of the person who looks forward to those times. I like spending time with my parents, call me lame, but I do.
Mom still has cancer, and life isn't peachy, but I'm happy that we can be together and see people we love all the time. Another new routine that we have gotten used to is mom opening cards (me watching) and just crying together about how nice people have been. I know we have said this all the time, but we are learning a lot through all of this. We opened a card today from someone who just went through cancer. She wrote very comforting words that touched us both. Did we send her a card when she was sick? no. But, we are learning and this has changed us, changed us for good. Expect something from us next time you're down and out.
My mom is superwoman. So strong and beautiful. She looks great, makes me laugh and we have a pretty good time together. Thanks mom, I love you.
I meant to do this a while ago, but I think my mom wanted me to put some pics up of the new and improved craft room. I have been using it a bunch and now I do my homework down there too. I love it. Thanks Aunt Krista for helping me finish this project, it has been a long time coming.
 |
| This is the desk that I bought for $6 and painted orange. New knobs (sprayed silver) and wahlah, a cute project that looks great in my bedroom. This was the day before mom went in for surgery. |
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| Before....kind of a mess |
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| Pink! |
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| Here we are, finished, and proud of the job well done! (this was right when mom got home from the hospital) |
Much love to all, Mieke
Mom also wants me to thanks couple people for things today.
Karen for the wonderful supper. We enjoyed it very much.
Lori for the very cute sunflower and banana bread, always good to visit with you.
Vickie for the flowers, they are so beautiful.
Tuesday, September 6, 2011
Standing date of Tues at 9am
Got home around 6pm, stopped by purchase my wig at Brenton Village. Stan agreed it looked just like my real hair. They now tell me because of the weekly chemo dose, I may start getting thin, but I may not loose my hair quite as fast as they previously said, in 11-14 days. Well, either way, I am now ready!
I slept all the way home, so quite tired, no nausea yet. Yeh, I have to take meds before bed and then more for the next few days to prevent that. My abdomen is still healing , so I am not too excited about the thought of vomiting, if you know what I mean.
Ok, to update from my previous blog of today. I found out that I will continue to receive my chemo treatments in GR. The reasons for this are a few: I would have to totally transfer to an oncologist to manage my care there. I would like to continue with my surgeon/oncologist because there is still a small chance I may ever need more surgery to remove some of the cancer, if the chemo would shrink some of the cancer and they could safely remove some. Another reason is there is a real shortage of chemo meds. Nationwide clinics are having a hard time getting fairly common and routine drugs. Dr. Harrison's office have all the drugs I will need saved with my name on them, and that is a good feeling. Also, I have heard very good reports that he is very good at managing the chemo treatments and I feel good about that also.
Lots of fun surprises waiting for us when we got home:
Jodi's homemade chicken soup.......nothing tastes better when you don't have much appetite than that.
Crane's beautiful lattice top cherry pie from my friend and cancer survivor Deb B.
CD of scripture sung to wonderfully calming music, it was produced as a lullaby CD, but it is popular for"kids of all ages" even middle age kids. Thanks Denise, my sister's new friend from Tulsa and now my friend too. Can't wait to meet.
Any then a surprise package from my old gradeschool buddy Dave W. I knew it would be something different, so I'll share. He said he hopes we were familiar with the phrase, sending coals to Newcastle, because that is what was enclosed. 2 different flavors of milkshakes. Dave has been enjoying Stan's blog and he had to show us that Stroh's and Vernors were not out of business. You are a very thoughtful nut, and that is why we love you. Stan is already enjoying one! I looked up the phrase to make sure I knew exactly what it meant, and yep I was right.
So I now have all my appts made for Tues at 9am in GR. They will be around 2 hr appts and then every third one will be a 3 1/2 hr appt because I need to see the Dr. at that one. I have blood work done before chemo starts each week. Thanks for everyone's kind words and thoughtfulness as begin this new part of the marathon ............Turtle Saver (Anna, how do you remember that I saved a turtle way back yrs ago?? you have a good memory)
I slept all the way home, so quite tired, no nausea yet. Yeh, I have to take meds before bed and then more for the next few days to prevent that. My abdomen is still healing , so I am not too excited about the thought of vomiting, if you know what I mean.
Ok, to update from my previous blog of today. I found out that I will continue to receive my chemo treatments in GR. The reasons for this are a few: I would have to totally transfer to an oncologist to manage my care there. I would like to continue with my surgeon/oncologist because there is still a small chance I may ever need more surgery to remove some of the cancer, if the chemo would shrink some of the cancer and they could safely remove some. Another reason is there is a real shortage of chemo meds. Nationwide clinics are having a hard time getting fairly common and routine drugs. Dr. Harrison's office have all the drugs I will need saved with my name on them, and that is a good feeling. Also, I have heard very good reports that he is very good at managing the chemo treatments and I feel good about that also.
Lots of fun surprises waiting for us when we got home:
Jodi's homemade chicken soup.......nothing tastes better when you don't have much appetite than that.
Crane's beautiful lattice top cherry pie from my friend and cancer survivor Deb B.
CD of scripture sung to wonderfully calming music, it was produced as a lullaby CD, but it is popular for"kids of all ages" even middle age kids. Thanks Denise, my sister's new friend from Tulsa and now my friend too. Can't wait to meet.
Any then a surprise package from my old gradeschool buddy Dave W. I knew it would be something different, so I'll share. He said he hopes we were familiar with the phrase, sending coals to Newcastle, because that is what was enclosed. 2 different flavors of milkshakes. Dave has been enjoying Stan's blog and he had to show us that Stroh's and Vernors were not out of business. You are a very thoughtful nut, and that is why we love you. Stan is already enjoying one! I looked up the phrase to make sure I knew exactly what it meant, and yep I was right.
So I now have all my appts made for Tues at 9am in GR. They will be around 2 hr appts and then every third one will be a 3 1/2 hr appt because I need to see the Dr. at that one. I have blood work done before chemo starts each week. Thanks for everyone's kind words and thoughtfulness as begin this new part of the marathon ............Turtle Saver (Anna, how do you remember that I saved a turtle way back yrs ago?? you have a good memory)
Still sitting in the recliner..........
Hi Everyone, thought I would give you an update. I started out the only person in the chemo treatment room, it filled up quickly with 8 more people and now guess what, I am the only person left. It took a while to get this baby rolling. They started me out with just "hydration" fluids, then the Chemo camouflage meds,(to prevent side effects), and then now they are giving me the real deal. Of course I had to have some reaction to this drug ( fairly common on your first dose). They had to stop it for a while and give me more meds to prevent nausea. They recently restarted it and so far so good. I like to imagine that it is just having a good 'ol time fighting with the cancer.
The nurses here are great, and the atmosphere is very cheery and nice. They have coffee, juices etc. for patients and visitors. Lots of current magazines, books etc. Even had a patient bring in some pumpkin dessert to share.
One thing that did happen is that I am not in the clinical trial. I got word last Friday afternoon that there might be a problem getting me accepted into it. Because of my history of thyroid cancer 4 yrs ago, I did not fit the proper criteria for acceptance to be in the trial. They tried to get me in by saying that it was head/neck cancer......but they never heard from the head guys with many attempts at email, calls, etc. So, because they needed to start something, they decided to start me on my own and not be in the clinical trial. The Dr. had said he wanted me to be on a weekly regime rather than every third week, and so I am glad that is what we are doing. They will have to petition my insurance, to cover the expensive third drug. So if you could pray for that, it would be wonderful. I am receiving the same exact drugs I would have received in the trial, they don't start the 3rd drug (Avastin) until the 2nd or 3rd time anyways.
Mieke left to go babysitting. We thought that for sure we would be home by 4pm, but I guess with this stuff, you never know what is going to happen. Kris is still here and Stan will pick me up on his way home.
I am not sure if I will be able now to have my treatments done in Holland or not, will have to talk with them about that later.........So, for now, that is what I know. Thank you all for the many wonderful wishes for a good day, will give you an update tonight.
I have also been given the new nickname, Turtle Saver.
The nurses here are great, and the atmosphere is very cheery and nice. They have coffee, juices etc. for patients and visitors. Lots of current magazines, books etc. Even had a patient bring in some pumpkin dessert to share.
One thing that did happen is that I am not in the clinical trial. I got word last Friday afternoon that there might be a problem getting me accepted into it. Because of my history of thyroid cancer 4 yrs ago, I did not fit the proper criteria for acceptance to be in the trial. They tried to get me in by saying that it was head/neck cancer......but they never heard from the head guys with many attempts at email, calls, etc. So, because they needed to start something, they decided to start me on my own and not be in the clinical trial. The Dr. had said he wanted me to be on a weekly regime rather than every third week, and so I am glad that is what we are doing. They will have to petition my insurance, to cover the expensive third drug. So if you could pray for that, it would be wonderful. I am receiving the same exact drugs I would have received in the trial, they don't start the 3rd drug (Avastin) until the 2nd or 3rd time anyways.
Mieke left to go babysitting. We thought that for sure we would be home by 4pm, but I guess with this stuff, you never know what is going to happen. Kris is still here and Stan will pick me up on his way home.
I am not sure if I will be able now to have my treatments done in Holland or not, will have to talk with them about that later.........So, for now, that is what I know. Thank you all for the many wonderful wishes for a good day, will give you an update tonight.
I have also been given the new nickname, Turtle Saver.
Monday, September 5, 2011
Tomorrow is a big day for kids and me...
First day of school and first day of chemo. I have to be at the Dr.'s office at 9am. Mieke is going with me and my sister Kris is meeting us there. She returns to Tulsa on Wed.
We had a very nice, relaxing time up north. Watched movies, sat on the deck, watched the birds, watched Alden catch big bass, and watched Ross row Rumy around in the boat. My daughter-in-laws did the cooking and clean up, they are wonderful. Enjoyed seeing all the wedding pictures from Bulgaria, looked like they had a wonderful time. They brought us each some great gifts.
Got to visit with my brother-in-law Tim who flew in for the weekend. So good to all be together.
I got a small canoe ride around the pond and I think I saved a turtle who seemed to be stuck on a funny V shaped log. I looked at him as I paddled up, and usually the turtles always duck into the water when a human comes near, but this guy was stuck and did not seem to be able to move at all, and I kind of felt a lot like him, stuck.......
Thanks for bringing dinner, and more, Claudia, so nice of you! I hope I can join the BBC girls when you go to Cranes for lunch and picking. I miss you all so much.
Kay, my neighbor across the street from Chicago was so kind to bring over a beautiful, very soft, pink robe. I love it, and I know it will be used a lot while I don't feel like getting dressed from Chemo days.
Gayle, so happy for your new position at Waukazoo! They are lucky to have you, thanks for the rhubarb bread.
Well, kids are getting their backpacks all ready for the start of school tomorrow and my chemo bag is packed. I have to remember to put my numbing cream on my port before we leave (so it doesn't hurt when they stick the needle in).
Mieke, Jackie, and I went to "The Help" tonight. I loved the book and enjoyed the movie too. I hate that there is hate in the world and movies like that make you think a lot about horrible things like racial discrimination. It is so ridiculous that humans can treat other humans like that. That is all I can say.
A strange mixture of feelings going on right now. The day I've waited for is here, and I'm dreading it. I don't want to be sick, or have cancer but that is what I'm facing now, so bring it on. Let's do this thing.
Deb
We had a very nice, relaxing time up north. Watched movies, sat on the deck, watched the birds, watched Alden catch big bass, and watched Ross row Rumy around in the boat. My daughter-in-laws did the cooking and clean up, they are wonderful. Enjoyed seeing all the wedding pictures from Bulgaria, looked like they had a wonderful time. They brought us each some great gifts.
Got to visit with my brother-in-law Tim who flew in for the weekend. So good to all be together.
I got a small canoe ride around the pond and I think I saved a turtle who seemed to be stuck on a funny V shaped log. I looked at him as I paddled up, and usually the turtles always duck into the water when a human comes near, but this guy was stuck and did not seem to be able to move at all, and I kind of felt a lot like him, stuck.......
Thanks for bringing dinner, and more, Claudia, so nice of you! I hope I can join the BBC girls when you go to Cranes for lunch and picking. I miss you all so much.
Kay, my neighbor across the street from Chicago was so kind to bring over a beautiful, very soft, pink robe. I love it, and I know it will be used a lot while I don't feel like getting dressed from Chemo days.
Gayle, so happy for your new position at Waukazoo! They are lucky to have you, thanks for the rhubarb bread.
Well, kids are getting their backpacks all ready for the start of school tomorrow and my chemo bag is packed. I have to remember to put my numbing cream on my port before we leave (so it doesn't hurt when they stick the needle in).
Mieke, Jackie, and I went to "The Help" tonight. I loved the book and enjoyed the movie too. I hate that there is hate in the world and movies like that make you think a lot about horrible things like racial discrimination. It is so ridiculous that humans can treat other humans like that. That is all I can say.
A strange mixture of feelings going on right now. The day I've waited for is here, and I'm dreading it. I don't want to be sick, or have cancer but that is what I'm facing now, so bring it on. Let's do this thing.
Deb
Friday, September 2, 2011
Away for the weekend
We are going to go up north to the "Hoksbergen Homestead" for the weekend. Our boys and their wives will be there and also some other family members. We are looking forward to the little diversion from all the "Cancer" goings on before I start chemo on Tues.
A friend from church and a member of her prayer group came over and prayed with me, my sister and two friends today. Thank you so much Sylvia.
Had a great time with "old" friends who came and brought Panera for lunch. We grew up together in the Detroit area and went to the Grosse Pointe Christian Day School, a 4 room 1-8 grade school house. Thanks Helene and Jean for the flowers, the quilt from Margaret's Hope Chest, ( check out www.Margaret's Hope Chest.blogspot.com It is a very interesting non-profit program.), and the darling Periwinkle turban and scarf to keep my head warm this winter. My sister and I and these two friends have been friends since birth practically. Helene has been through breast cancer herself and Jean's daughter-in-law was just treated last year for Hogkin's Lymphoma and is in remission. They had lots of helpful hints and suggestions.
Thanks Val for the delicious supper, so appreciated. I took my port bandage off today and I am happy to report, it doesn't look too bad.
Have a wonderful Labor Day Holiday everyone, thanks for your prayers, love and expressions of concern. It means the world to us!!
A friend from church and a member of her prayer group came over and prayed with me, my sister and two friends today. Thank you so much Sylvia.
Had a great time with "old" friends who came and brought Panera for lunch. We grew up together in the Detroit area and went to the Grosse Pointe Christian Day School, a 4 room 1-8 grade school house. Thanks Helene and Jean for the flowers, the quilt from Margaret's Hope Chest, ( check out www.Margaret's Hope Chest.blogspot.com It is a very interesting non-profit program.), and the darling Periwinkle turban and scarf to keep my head warm this winter. My sister and I and these two friends have been friends since birth practically. Helene has been through breast cancer herself and Jean's daughter-in-law was just treated last year for Hogkin's Lymphoma and is in remission. They had lots of helpful hints and suggestions.
Thanks Val for the delicious supper, so appreciated. I took my port bandage off today and I am happy to report, it doesn't look too bad.
Have a wonderful Labor Day Holiday everyone, thanks for your prayers, love and expressions of concern. It means the world to us!!
Thursday, September 1, 2011
Deb's "Best Friend" can finally be put to work...
Krista, Deb's sister, has the reporting task today:
A nurse friend told Deb that her "port" is a gift. Others have said it would become her best friend. Well, it is time to put this friend to work. And if all goes as planned, that friend will be the port of entry for Deb's chemo beginning this Tuesday. (Pending results of blood tests done today.)
Let me back up a bit. Not sure exactly what happened here at the Hoksbergen's this A.M. since I left to take care of my broken-ankle-daughter Becky and her 20 month old son, Drake, in Grand Rapids. But I can share highlights of what happened in the afternoon.
At 1 pm Deb and her entourage convened at 1000 East Paris for her Chemo Counseling Appointment with Amber. Stan, Mieke, sister-in law Nancy, and I gathered to hear what they had to say and, especially, if her ulcers, discovered yesterday, would delay the start of chemo. We waited patiently to the very end when Amber asked if we had any questions and Deb whispered the "W" word...WHEN???? We were thrilled when Sept 6 was identified as the potential start date. Deb still does not know which protocol she will be assigned to, but hopes to find out tomorrow. Once that is determined she will have a schedule to build her calendar around for the next 5 months (approximately.)
Before that good news was shared, we heard all about side effects, meds, diet, and everything else you might want to know about chemo...and more. Deb shared her photos from the EGD procedure of yesterday. She also signed on the bottom line to become the first patient in her doctor's practice to join this specific clinical trial. She is the 292nd person in the world to enroll.
The best message that was delivered was: "Live your life." They will not give Deb a lot of restrictions.
Sounds good to her!
P.S. It was such fun yesterday to see Deb have a warm reunion with all her wonderful co-workers up on the BBC (Boven Birth Center, Holland Hospital.)
A nurse friend told Deb that her "port" is a gift. Others have said it would become her best friend. Well, it is time to put this friend to work. And if all goes as planned, that friend will be the port of entry for Deb's chemo beginning this Tuesday. (Pending results of blood tests done today.)
Let me back up a bit. Not sure exactly what happened here at the Hoksbergen's this A.M. since I left to take care of my broken-ankle-daughter Becky and her 20 month old son, Drake, in Grand Rapids. But I can share highlights of what happened in the afternoon.
At 1 pm Deb and her entourage convened at 1000 East Paris for her Chemo Counseling Appointment with Amber. Stan, Mieke, sister-in law Nancy, and I gathered to hear what they had to say and, especially, if her ulcers, discovered yesterday, would delay the start of chemo. We waited patiently to the very end when Amber asked if we had any questions and Deb whispered the "W" word...WHEN???? We were thrilled when Sept 6 was identified as the potential start date. Deb still does not know which protocol she will be assigned to, but hopes to find out tomorrow. Once that is determined she will have a schedule to build her calendar around for the next 5 months (approximately.)
Before that good news was shared, we heard all about side effects, meds, diet, and everything else you might want to know about chemo...and more. Deb shared her photos from the EGD procedure of yesterday. She also signed on the bottom line to become the first patient in her doctor's practice to join this specific clinical trial. She is the 292nd person in the world to enroll.
The best message that was delivered was: "Live your life." They will not give Deb a lot of restrictions.
Sounds good to her!
P.S. It was such fun yesterday to see Deb have a warm reunion with all her wonderful co-workers up on the BBC (Boven Birth Center, Holland Hospital.)
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